LifeAfterDx--Diabetes Uncensored

A internet journal from one of the first T1 Diabetics to use continuous glucose monitoring. Copyright 2005, 2006, 2007, 2008, 2009, 2010, 2011, 2012, 2013, 2014, 2015, 2016

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Location: New Mexico, United States

Hi! I’m William “Lee” Dubois (called either Wil or Lee, depending what part of the internet you’re on). I’m a diabetes columnist and the author of four books about diabetes that have collectively won 16 national and international book awards. (Hey, if you can’t brag about yourself on your own blog, where can you??) I have the great good fortune to pen the edgy Dear Abby-style advice column every Saturday at Diabetes Mine; write the Diabetes Simplified column for dLife; and am one of the ShareCare diabetes experts. My work also appears in Diabetic Living and Diabetes Self-Management magazines. In addition to writing, I’ve spent the last half-dozen years running the diabetes education program for a rural non-profit clinic in the mountains of New Mexico. Don’t worry, I’ll get some rest after the cure. LifeAfterDx is my personal home base, where I get to say what and how I feel about diabetes and… you know… life, free from the red pens of editors (all of whom I adore, of course!).

Monday, May 11, 2009

In (very) good company

So our new Pres says we should talk to our enemies before we shoot them and bomb them back to the stone age. Ummmm….OK, I think I might have paraphrased that just a little bit. But I think the approach is prudent. Communication can kill conflict. It can ease tensions. It is civilized, and most problems can be solved in a civilized manner.

Who are the enemies of the D-tribe? Ignorance and Insurance, I’d say. Many others would say big Pharma is also our enemy. I wouldn’t go that far. They keep us alive and more-or-less healthy. But they aren’t exactly our friends either, are they?

One big complaint is that they are clueless to the needs, desires, and overall culture of D-folk. Now it seems one company wants to change that. Maybe. Or maybe something more sinister is afoot. In a minute you’ll see just how paranoid we D-folk are of people who are not quite our friends and not quite our enemies.

So I first got wind of this a couple of weeks ago when I was doing my morning routine of drinking Starbucks and visiting Amy’s blog, which I regard as the New York Times of Diabetes. I start each work day this way. No point in going to work if they cured diabetes, now is there? On this particular morning, Amy was talking about a Summit hosted by the folks at Roche Diabetes Care.

A summit between us and them. Hmmmmmmmmmm…..

It is officially called the Roche Diabetes Care Social Media Summit. Amy says they want to meet with the 25 “most vocal diabetes advocates on the web.” Roche themselves are calling it a gathering of “a small group of thought leaders in the e-diabetes community.”

Of all the players in Diabetes who really ought to listen to their customers, Roche came as a surprise to me. They make the terrible Accu-Chek meters and the terrible Spirit insulin pump. They’ve got a Byetta type drug before FDA…but…well, they always struck me as a “me-too” player in the D-gear and D-med biz. At least nowadays.

Do they have something new up their sleeves?

Do they really want to understand us, or are they trying to figure out a way to use the D-blogosphere as a marketing tool? Good luck with that. The wild-west has nothing on us.

Amy tells us the plan is to create a “manifesto” outlining how we can all work together for common good of patients; and to create a list of “Do’s and Dont’s” in the complicated soup of Pharma / Blogger relationships. Hmmmmm…. Sounds a bit more like a treaty rather than a manifesto; but isn’t that what Summits are for? Someone had better bring a peace pipe.

Anyway, diabetes having not been cured, I had to go to work and treat it. Next best thing.

Two hours later, at the clinic, I check my email and find an email from Roche. What a coincidence, I was just reading about you folks. When I opened it, I got the shock of my life. It was a save the date email. I was being invited to the Summit. I was one of the thought leaders. One of the most vocal of my tribe. Well, I know I have a big mouth, but….

It got even better. When I looked over the “CC” list on my email, I couldn’t believe my eyes. It is a virtual who’s-who list of everyone I know and love and admire on the D-blogosphere. And me too! Yikes!

I couldn’t wait to tell my wife when I got home, so I didn’t. I called her with the news. When I walked in the door that evening I said to her, So how’s it feel to be married to one of the 25 most important diabetics on the internet? To which she gave a non-committal shrug, popping my ego-filled balloon.

On the bright side, my Mother was appropriately proud, excited, and full of advice that I need to ramp up my writing again……


Blogger Crystal said...

Woo Hoo!!!
I still cannot believe I was invited. I blame Amy. I don't think she minds tho.

Hope to see you there!!!

8:09 AM  
Blogger Scott K. Johnson said...

I'm looking forward to it as well. While I understand they couldn't invite everyone, there are many good friends that I wish would be there with us.

9:53 AM  
Anonymous Allison Blass said...

I'm so excited to go to! I've managed to meet quite a few on the list, but everyone lives so far and wide that it would take forever to meet everyone. Having ya'll in one place is going to be AWESOME.

9:58 AM  
Blogger jlash said...

This comment has been removed by the author.

10:34 PM  
Blogger jlash said...

yeaaah Lee! you're number 1 influential e-diabetic in my book...

10:35 PM  
Blogger Unknown said...

Thanks Will for representing, Your book as well as this blog has really had a positive impact on my life. I look forward to hearing all about the summit. Again thanks

8:03 PM  

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