I was ambushed in the hallway not ten paces from the
door. I had slipped in the ambulance entrance because that’s the most likely
way to get into the building and to my office without being seen. Of course, I
wasn’t likely to succeed because my office faces the giant glassed-in fish bowl
that’s the nurses’ station, but it was still worth a try.
As this was going to be my first day seeing patients
again, I wanted a slow start. I was, well, nervous. Nervous that I’d forget
something important. Nervous that I’d make a mistake. Not confident that I can
function in my clinical role, once again, I have not packed lunch.
I was supposed to have half an hour to get my bearings, and
do a through chart review on the two patients I was to see this morning. I
normally do a brief chart review anyway, but I’d been gone so long that who
knows what might have happened in my absence. Plus, I simply needed to remember
who the hell these people were in the first place.
Last week, when I peered ahead at my schedule, some of
the names were unfamiliar to me. I called up their records to see their faces
and strangers starred back at me from their driver’s license-like mug shots on
the computer. Yet below the mug shots were notes, apparently written by me,
documenting visit after visit after visit after visit. Clearly these people
were my patients and many of them, it appeared, I had worked with for years. But
both the visits and the people themselves were missing from my memory. They
were alien and the chart notes seemed like someone else’s—stirring no memories,
awakening no recall.
It was worse than unnerving.
Of course, if that had happened with all the patients scheduled to see me this week, I would have left
my keys and resignation on my desk and walked away. But luckily not all my
patients were blank canvasses. Some were fuzzy, like distant mirages, but still
in my memory. Isn’t she my Butterfinger addict? Hmmm…. Is that the one with the
little dog… No, that’s her sister. Wait, isn’t she the one who stabbed her
husband with a steak knife at the family reunion?
Yet still others were crystal clear. I could remember
everything about them: The patterns of their blood sugars, the meds they used
now, the meds we tried but failed with in the past, what motivated them, what
their roadblocks are, the names of their children, their stresses and
challenges.
Why some were so clear; some were so fuzzy; and others so
completely absent from my mind, I have no clue.
But the slow start I was geared up for was not to be. As
I made my way down the hall, one of the providers popped out of a treatment
room like a spider and literally grabbed me. With a vice-grip-like hold on my bicep,
she spun me around in the opposite direction of the safety of my office. “I
need you to do an insulin start. Right now.” A cold chill cascaded over my
body. Insulin starts are the most delicate, most difficult, most dangerous
thing that I do clinically.
Normally, I relish the opportunity.
Insulin, done right, is the best weapon in our anti-diabetes
armory. Insulin, done right, makes people happy and whole again. But insulin
has a bad rep. It’s widely feared for no fair reason. To start insulin is more than
just a, here, this is how the pen works.
We have to deal with the fear factor and overcome it. Patients need to
understand how it works, and how it doesn’t work. I need to ensure the starting
dose is high enough to work but not too high. Bringing people down too quickly
triggers relative hypoglycemia, and worse. Retinopathy “explodes” when sugars
are normalized too quickly. But choose a dose too low to do any good, and
patients get frustrated at taking shots without results.
Normally, I’d have a week’s worth of BGL data to study
and make sure we knew the range, the curve, the shape, the lowest reading and
the highest. And I’d have an hour with the patient.
This time I had no data and a time frame of only 15
minutes.
My new patient is a “visitor” from Mexico, pawned off on
us by the free clinic as being too complicated for them to manage. Her sugars are
screaming high. Her English is good but her husband doesn’t speak a word. He’s
come along to be supportive, but she needs to provide him a running translation.
I feel like a fish out of water. A shirt without a tail.
A bear out of the woods. OK. I seem to be out of good idioms.
After being introduced, I take the couple back to my
office. My brain is like a car on a cold morning. I keep turning the key and it
goes Wrrrrrrr….Wrrrrrrr…..Wrrrrrrr….
but never quite fires up and runs. I try to keep a calm exterior, but inside I’m
freaking out.
Don’t fuck this
up. Don’t fuck this up. Don’t fuck this up.
She has kind eyes, but is afraid. Dissipating that fear is
job one. Assessing her further, I note that she is globally chubby, with
significant truncal fat, and has heavy staining of acanthosis nigricans around her
neck. Adding all of this up tells me she’s probably more insulin resistant than
usual. Her starting dose needs to be adjusted accordingly. I throw my go-bag in
the corner, take off my coat, and put it across the back of my chair. I motion
to the pair of chairs under my new painting of the little airplane diving into
the storm. Siéntese, por favor.
Here we go again, little plane. Into the jaws of the
storm we’re both destined to fly.
I sit in my chair and open my rat’s nest drawer. My
approach to drawers is to simply let them fill up until you can’t cram another
thing into them, or until you have to move your office. Over the last eight
years, I’ve found myself moving offices more often than cleaning drawers.
I rummage around for a minute, and then get out a saline
training pen and a few pen needles and lay them on my desktop. Something is
missing. There should be more stuff. Think. Think,
damn it!
I don’t have a clock in my office, but I swear I hear one
ticking.
Like a swarm of gnats, snippets of thoughts buzz around in
my head. Bzzzz...…site
rotation…titration…air shot…bzzzz…needle sheath…plunger…hold time…hypo warning…bzzzz…sharps
disposal…BG target...room temp…bzzzz...bzzzz...bzzzz...bzzzz...
I can’t really grasp one complete thought. They are all
in motion, all fragmentary, a blizzard of fragmentary sticky notes that are not
yet a speech. They are all the things I need to tell her but I can’t figure out
where to start and how to weave the thoughts together. In the past the various
elements just flow through my mind, mouth, and hands. Normally, when it comes
to insulin starts, I’m graceful.
Today is the mental equivalent of the first time I wore
ice skates.
Um… sorry if I
seem a little distracted. I’ve been out for a time and I’m just back on the job…
I don’t know how it went. To me it seemed awkward.
Rushed. But I don’t think I did anything wrong and Bill Clinton didn’t
interrupt the process. I guess I’ll know how I did at her follow up in two
weeks time. Or sooner if I fucked up.
As the day wears on, we have two new diagnoses that I
don’t think I handled as well as I should have. I also see some old patients.
I’m able to download their meters with little difficulty, but the swirling
patterns of dots and lines aren’t whispering to me in their secret language.
I’m not seeing the mystic ebb and flow of insulin and sugar that normally
appears to me like heat applied to messages written in invisible ink.
The pain in my gut rises and falls like the tide, but as
the short day wears on I find that more and more, the fog in my mind is
beginning to lift.
My last patient is a pumper on a CGM. I plug her Dex 4
into my laptop and the computer sucks the data out of the device like an
electronic vampire. I turn the screen to share it with the patient and an
advanced nurse practitioner student who has been assigned to me for the back
half of the day to begin to learn all things diabetes. I warned her she was
being led by a blind man.
“Wow,” says my student.
“Augh,” says my patient.
I don’t say anything. The tangled mass of colored trace
lines on the computer screen looks like the cat has gotten into grandma’s yarn
collection. I can’t make sense of it, but fell I should be able to. I wrote the
book on CGM, fer God’s sake. Literally.
The silence stretchs on. Uncomfortably so.
Finally, my student clears her throat, “Uh… What am I’m
looking at?” she asks.
I snort. I have no
fucking idea. It’s the truth, but probably not the best teaching method. My
patient giggles. They love it when I swear. OK,
I tell my student, this is an X-Y graph.
We are looking at time left to right and the level of the blood sugar
vertically. The device checks the glucose level in the interstical fluid every
five minutes. Each test has a mark. The trail of marks is called a trace. I
run my finger along the computer screen to show her. The marks change color every day and we can… we can… Suddenly, I
see it. My finger freezes. Wait a minute.
Well, what do
we have here? Hidden in the forest, I suddenly spot a
grove of trees. Amongst the chaos, a pattern is emerging.
Wrrrrrrr….Wrrrrrrr…..Brum-burm-burm…Vroom!
My brain restarts.
Nearly hidden by wide variation during her sleeping
hours, and the insane tangle of variety that follows her breakfast, her blood
sugar traces show a pre-dawn rise. Every day. In a flash I know she needs more
basal insulin an hour upstream. I smile, This
we can fix.
Tomorrow I’ll pack lunch.
3 Comments:
You may be struggling with your memory, but you sure haven't lost your ability to write.
Good luck! I hope all is well as soon as possible.
I'm always amazed with you, Wil. For your strength, your writing ability, and your fortitude. Keep on keeping' on!
Wow Wil, I couldn't write like this on the best of days. I hope you have a full recovery quickly my friend.
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